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I have been living with HIV for _ years

This forum is an opportunity to discuss further about how many years our members have been living with HIV. It is giving folks a chance to share their lived experiences.

How long have you been living with HIV? And what has your experience been like?

  1. I have been living with HIV for almost 4 years now, and every day is a different day. Some days I wake up, ready to take on the world, and others. .. I'm too sad to function. I believe it has gotten easier as time has gone by.

    1. Hi, have you been diagnosed? Or are you awaiting? I know the wait is sometimes daunting but remain positive.

      -Ze (Team Member)

    2. Hi . How are things going for you? I see that you had no diagnosis, have you received any results? I understand how you may be feeling and hope you reach out if you need to.

  2. Twenty seven years for me

    1. That's great. I know I always think back to the few treatment options that were available when I seroconverted. What do you think about the regimens available today?

    2. To be honest, they're very much better than a quarter century ago; even the advances in the past ten years are truly awesome. Mine is highly adapted, so I have a two tablet regimen. But two tablets daily to keep from a slow cruel death? Totally worth it.

  3. It's been four years for me. It shadows every single day of my life.

    1. I am very lucky to live in Boston where research is always On. So whenever I go to my doctor I ask about what's out there. I do from surveys, to ultrasounds, to white cells donation, try new drugs (these are normally ACTG studies)... I really do it all. Just ask your medical team and depending who they work with they should be able to let you know what's available.

    2. It sounds like you have some strategies for your treatment options. Has this helped with how you were feeling a few months ago?

  4. Hello!

    I was DXed in 1998. I took the test out of boredom. I couldn't possibly be poz, LoL.

    So, I was a lil more than shocked! Now, it's been so long I don't even think about it much. Health is good. I'm 57 now and better off than most folks my age. Poz or not.

    1. Alafia (Peace) What an amazing journey you have been on. It's great to hear your health is good. Khafre (Team Member)

    2. Alafia (Peace) I wanted to check in on you to see how you are doing. Check in if you don't mind. We want to know that you are alright. Khafre ( Team Member)

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