caret icon Back to all discussions

I have been living with HIV for _ years

This forum is an opportunity to discuss further about how many years our members have been living with HIV. It is giving folks a chance to share their lived experiences.

How long have you been living with HIV? And what has your experience been like?

  1. I have been living with HIV for almost 4 years now, and every day is a different day. Some days I wake up, ready to take on the world, and others. .. I'm too sad to function. I believe it has gotten easier as time has gone by.

    1. I have been positive for 20 years

    2. I hope you are feeling better. If you have access to a pool the exercises in pools are a lot easier on the joints & muscles! Praying you get invigorated💜

  2. Twenty seven years for me

    1. Alafia (Peace) That is so sweet of you to reach out to our member and offer your support and assistance. Good on you. Thank you so much. Khafre (H-I-V.net Team Member)

    2. It sure is 😊

  3. It's been four years for me. It shadows every single day of my life.

    1. Thank you for replying Richard. I am not sleeping most nights. Worry, think, why, how, I don't switch off. Today I'm a walking Zombie. I'm dizzy, no energy, battling to eat - I don't want to socialize. I just want to curl up with my forever loving sausage dog and sleep all day through with her. I don't want to cook. It's so hard. I'm 54 and feel 95. My head is bursting today because I did not sleep last night. Best go and get a pain relief. Much love, and light from sunny SOUTH AFRICA.

    2. Hi . It is understandable that your life would be upended with the unexpected diagnosis and dramatic change in your life. I want to share with you this article from our editorial team on depression and anxiety: https://h-i-v.net/depression-anxiety. It is important to take care of all aspects of your health and the emotional side of the HIV diagnosis feeds into everything else. If you feel the need, please don't hesitate to reach out for professional help - your doctors really should be recommending therapy as part of new treatment regimen. Please know that this community is here for you. Best, Richard (Team Member)


  4. Hello!


    I was DXed in 1998. I took the test out of boredom. I couldn't possibly be poz, LoL.


    So, I was a lil more than shocked! Now, it's been so long I don't even think about it much. Health is good. I'm 57 now and better off than most folks my age. Poz or not.

    1. hi there well it seems he's not the only one I've been engaged now for one year my partner is negative I have been able to educate him to the proper protocol to protect him we have gotten him the proper drug to protect him and I am negative I have been negative for 10 years now I have been living with HIV for 34 years this past January I am undetectable with a t-cell of 680 8 and detectable I said undetectable sorry percentage rate of 36, in 1990 I was given 4 years to live I didn't think anybody would want me majority of my relationships were abusive one way or the other I was almost killed once in a relationship I felt like nobody would want me I have been engaged now three different times I have stepped away from two of them this relationship here started as a friendship which is where I think they need to start and my fiance is an alcoholic who is now in a program in his City where he lives and I am hardly a drinker but I stopped I have been on medical marijuana for quite a while because of my eating disorder and the anxiety and the problem sleeping I am working on even giving that up to have a healthy relationship with my partner I feel that God has placed this man in my life and that we both want a healthy clean lifelong connection and I will do as he will do what we need to to make sure it is a clean healthy relationship I have never been happier as far as this is concerned and I never thought I could find someone who wasn't emotionally or physically abusive and God finally place someone in my life who loves me unconditionally I have three terminal illnesses on top of the HIV I have third stage renal kidney failure both kidneys and I suffer from simple partial seizures where we're not sure if there are any medications left that could help I may need surgery so to me to have a man that could love me unconditionally and stand by my side and want to get his life together as I do for him for myself and as he for him and for me is a gift from God above and neither of us will step away unless it is meant to be for each of us and our peace of mind and health

    2. Hi . Thank you so much for sharing your story. You have certainly been through a lot and deal with some major physical issues, so it is so great to hear that you are in such a good and positive place in your life. It is important for others to see stories like yours. Wishing you the best. Richard (Team Member)

Please read our rules before posting.