Still concerned after 5 years of treatment. I was first diagnosed in 2018 after being rushed to hospital with pneumonia and sepsis.
I had many years of being unwell and had regular trips to the doctor's before I was referred to the hospital to see a specialist. And after many test I was first diagnosed with IBS. The hospital doctor's and I was unaware of the real reason for my illness.
Months after feeling so unwell for so long I finally started to feel like I was getting better. Unaware of how bad it was about to become.
I was not great but felt much better for a good 6 months. Before I started to go down hill again I gradually got to the point where I could not breath and I was visiting the doctor's every week. I got another referral to the hospital but was on the waiting list. While I was waiting to get an appointment I was told by my doctor they think I have b12 Deficiency. They started me on injections straight away for the b12 witch caused me to have a reaction to the injections I was covered in a rash so they stopped treatment and was scratching there heads saying this is unusual. They told me I would need to wait for the hospital appointment and most likely be put on tablets for the b12.
I received a letter to attend the hospital for a check up but had to wait weeks for it. By then I got so bad I could hardly walk without breathing difficulty and was sleeping a lot more than usual I was exhausted and had a high temperature.
A bout a week before the hospital appointment I had come home from work and was shaking this did not last long so just dismissed it.
A couple of days later my temp was very high so had a freezing cold bath and went to bed with painkillers and ibuprofen. Through the night I was soaking wet and had woken up shaking uncontrollable at this point my partner phoned for an ambulance where I was ruched to hospital. I can't remember much from me arriving just bits of what went on but was finally put into a coma days later and my partner was told that I would be lucky to pull through. After awaking from my coma I made a quick recovery and was out of hospital within weeks with a plan for recovery.
Now it's been 5 years of medication I am very concerned that my cd4 count is still not normal and below average. I remember asking while I was in hospital how long to get my cd4 count level back to normal and I'm sure they said a year or so. It's been 5 years and still not where I would like it.