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HIV In America - What Is That?

Everyone's journey of living with HIV is different. As a chronic condition, living with HIV presents challenges ranging from medication side effects to lack of emotional and social support. In this survey, you can share anonymously and help others better understand what it means to be HIV positive.

How can a survey help?

What makes HIV so difficult, amongst other reasons, is the misinformation, stigma, and lack of awareness that still surrounds the condition. The HIV In America survey is an annual survey on that aims to raise awareness of the real, lived experiences of people who are HIV positive. The survey covers “basics” like diagnosis and treatment experiences and also dives into the nitty-gritty like the emotional impact and the seemingly “small” day-to-day challenges.

Why should I take the survey?

Each person that takes the survey contributes to a better understanding of HIV and can help others who are going through it feel less alone. Sharing experiences in the survey can reveal how similar each person’s journey with HIV is, as well as the differences that make each journey unique.

What will the survey ask me?
The survey will ask about diagnosis, symptoms, symptom management, quality of life and relationships, healthcare professional engagement, and treatment awareness and experience. We do not require your name, address, or other personal information.

Please note that you do not have to take the survey all at once. Feel free to bookmark the survey in your Internet browser and return when you are able. You will resume where you left off.

How do we use the In America Survey data?
Survey responses help us and our partners better understand the HIV community. All survey responses are kept confidential, reported only in total (your specific responses will not be reported individually), and will become property of Health Union, LLC.

What happens after I take the survey?

Each year after the survey closes, the Editorial Team at takes your responses and creates an infographic filled with information about living with HIV. But that’s not all – over the year, we publish articles based on learnings from the survey, like this on managing HIV symptoms and treatment. Each article published uses responses from the survey leads to more information available to those living with or impacted by HIV and helps them connect with those who have walked a similar path.

The 2020 survey is now closed

The HIV In America survey is now closed! We appreciate you taking the time to share your experiences with HIV in the survey. One voice may seem like it won’t make a difference, but each voice can change how others perceive living with HIV.

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