CommunityMember52a28c
Suppose you are undetectable with no major complaints feeling like you are not infected in your day-to-day life (you look on the outside even more healthy than some "normal persons"😉, how should a person like you live his normal life?
Are there people on this forum like that?
I want to hear from you. Thanks!
Robert Brunet Moderator
I've never treated it as a hindrance and actually consider it a motivator to try new things. It might seem a strange suggestion, but I find the times when we are feeling our best to be the right time to plan for when we will not be well. Long term care planning and end of life choices are easier to make when you have the energy to face difficult topics.
Thanks for bringing this subject up. I know there are many of us who have been surprised that we are able to live long and productive lives.
Let me know how things are going for you!
CommunityMember52a28c Member
Heather Renee Moderator & Contributor
I think everybody needs to give some consideration to long-term care and end-of-life decisions. When I saw everybody, I even mean people who are not living with a health condition. You never know when something could happen!
My best friend lost her husband recently. It was all so sudden and unexpected that they did not know what his long-term care and end-of-life wishes were. Since he also did not have a will, she is having to go through lawyers to deal with his family. I do not have much that would matter to anybody, but I am going to do a living will and medical proxy, etc.
Sendingn love - Heather R (team member)
CommunityMember632b5f Member
I agree. For me & all of those like me, keep on living & enjoying life to the utmost degree. And the others, I wish you well & still, live life to the utmost degree as possible.
Do not let ANYTHING get you down.
You are too valuable for that!
CommunityMember52a28c Member
Thank you for reacting to my post. Indeed, I'm just as upbeat as you are. LIVING MY LIFE TO THE FULLEST!
LizGreen Community Admin
CommunityMember52a28c Member
connierose Member
Loneliness is killing more of us than this disease nowadays.
I feel that far too often, people living an undetectable lifestyle prefer to look away from the fact they’re living with HIV because of the stigma. The reverse side are advocates, who shout it out loud but that takes its own toll on your mind and body too.
I have been living with HIV since 1996, A LOT has changed in that time. Newly diagnosed peeps in resource rich areas immediately gain access to medication, so thankfully Nowadays we get to figure out what normal is again.
Back in the early days, I heard that at group over and over - I just want to be normal again.
What’s normal?
To me - It’s getting up every day and completing your day to day activities. That’s normal.
This was a great question and I hope I helped a little.
Heather Renee Moderator & Contributor
I love your outlook on normalcy too. Getting 'back to normal' is more about having the ability to live a day-to-day life without a struggle. Many people are able to live their lives with HIV the same way that somebody without HIV (except they need to take a pill everyday).
Despite this, normal is overrated in my opinion. I like to live life with my own little spin on it. - Heather R (team member)