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HIV and pain

Since I started taking ARVs in 2017, there has hardly a day I have felt 100%. The first medication I was place on gave me neuropathy (Zidovudine, lamivudine and nevirapine). Fortunately, it was changed to a more palatable combination. But since then, I have had to deal with on/off flares of tingling and pain. It was usually in my arms, back of palms and under my feet, but in the past two weeks after a strenuous activity involving my knee, I have been having throbbing and sometimes burning pain radiating from my right knee to my ankle and to the side of my right thigh and up to my hip/waist bone. I use cold compress all day and a heat gel but they only give temporary relief. The shooting pains in my thigh is better now and only a dull ache but my ankle throbs all night when I lie on my back and keeps me awake. I have ulcer, so my doctor said pain meds are not a good idea and that most of it doesn't have much effect on nerve pain. I was given Neurovit forte for 2 weeks and I hope it makes it better.
I was just wondering if anyone is also dealing with acute or chronic pain as a result of this condition?

  1. it is really good to hear from you, although I am so sorry you're are going through these flares. I hope others will chime in with their own experiences. In the meantime, this is one article on nerve pain that has a few more tips - https://h-i-v.net/peripheral-neuropathy. I really hope you find some relief with the Neurovit, please keep us posted on how you're doing. - Liz Team Member)

    1. Thank you! I feel kinda better this morning. 🙂

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