Will the nausea and fatigue ever go away day by day I never know how I'm going to feel just HIV is taken over my life
This is my first time on here I'm a little nervous to share but I was diagnosed in 2021 I was in silver living and I slept with somebody and protected and I haven't got a straight answer when I asked them but I do think they had it before I slept with them and I think they knew which breaks my heart which is hard for me to deal with but it seems like since I've gotten the HIV stage 1 now that I look back I had every symptom I was so sick and it was right when I was getting my life together going to school moved out of sober living had my own place paying my own rent going to school to be a drug counselor and boom I got HIV and I was sick a lot I had to stop School now all my life has been his doctor's and specialist I feel like people that aren't educated on HIV treat you so different I feel like nobody's ever going to want me before I had a lot of drama before I was trying to change my life after everything I've been through I thought nobody would want me then but now that I have something I can't overcome I feel powerless I feel like my kids shouldn't have to take care of me because of this when I get older my memories fading my feet are messed up I'm tired all the time nauseated I'm on all this medication I don't know what to do I know I'm going on about different stuff I just don't know where else to go with this I'm lost and I'm stressing my family out causing a big ripple effect and it's not their fault trying to find a way to connect with people before I lose my mind God bless everybody on here we all deserve the best and we all have face value
Hi
. First, let me say that you have been through a lot and it is understandable that you are struggling with anxiety and stress. There are many here who understand and themselves work on finding ways to manage living with HIV and all that can come with it (see JT Otis here for example: https://h-i-v.net/living/anxiety-complementary-medicine). The fatigue is also a common struggle and TK wrote here about the reality that the fatigue is so much more than tired and sleepiness: https://h-i-v.net/living/eds-or-fatigue.
Perhaps the most important thing I want to note is that you are worthy of kindness, respect, and care. Coming to a place you can get information and support is a good step. Living with HIV can feel isolating and it is important to build a support system and I want to share with you this article on the anxieties around isolation and misunderstand of HIV and building support: https://h-i-v.net/living/anxiety-isolation-misunderstand. I know this is a lot of information I shared, but I want you to see you are not alone. Best, Richard (Team Member)Hi
First, I want to say that it takes so much courage to share your story the way you did. You’ve been through a lot — from getting your life on track, to dealing with this diagnosis, to still trying to be there for your kids. That alone already shows strength, even if it doesn’t always feel that way.
I think the first thing to start with is accepting what happened and making peace with it — not because it was right, but because you deserve to be free from the weight it’s still putting on you. Right now, it’s understandable that you’re still heartbroken and frustrated about how it all happened. But holding onto that pain only keeps you in the same place emotionally, and the longer you stay in that place, the more it wears down your mind and body.
You’ve been mad, sad, and heartbroken — and that’s okay. You’ve already given yourself space to feel it all, and that’s important. Now it’s time to start progressing toward emotional recovery and stability. That shift — from emotional turmoil to emotional peace — is power. It’s strength. It’s healing. Manifesting positivity in the mind gives a health boost to the body, and when you build peace inside yourself, you give your body a stronger foundation to fight and thrive.
Once you find that peace, you’ll notice you have more energy for yourself, your health, and your children. Taking your meds, practicing self-care, and keeping your emotional state balanced all work together to suppress HIV to the point where it barely affects you. Your kids need a mom who feels strong in her spirit — and peace opens the door for that strength to grow.
You said you’re “trying to find a way to connect with people before I lose my mind.” The truth is, the first connection to rebuild is the one with yourself (find that person you were before all this). Once you start reconnecting with yourself, it becomes easier to connect with others in a way that’s real, healthy, and uplifting.
You are not powerless. You are still here, still fighting, and still deserving of the best life you can build.
