Surviving 20 years
Last updated: May 2023
After surviving the 70s and 80s in NYC and repeatedly testing neg, I kind of thought I was immune.
Getting sick
I got really sick but my doctor didn't respond to my needs and I got pneumocystis pneumonia and then Stevens-Johnson syndrome. Viral load was 489,000. Of course I'm on meds now, but when I miss my meds, I get sick.
Access to medication
I miss meds cause my hiv doc doesn't keep my ADAP certification current, switches to PAF, and confuses me. Who else was already sick upon diagnosis?
Thanks to all and I am grateful to be alive right now.
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